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This paper provides information on the establishment, management and governance of biobanks in Australia. A biobank is a collection of human biological material held for health and medical research. Biobanks facilitate this research, while protecting participants’ interests and privacy.
The Research Involving Human Embryos Act 2002 requires that research on human embryos can only be conducted under a licence issued by the National Health and Medical Research Council (NHMRC) Embryo Research Licensing Committee (NHMRC Licensing Committee).
The paper identifies key issues that should be considered in relation to genetic testing, and identifies relevant resources, guidelines, standards, and requirements that are pertinent for the delivery of genetic testing in Australia.
The use of mitochondrial donation in Australia is regulated by a licensing scheme.
There are 2 Commonwealth Acts providing a regulatory framework to prohibit certain unacceptable practices including human cloning, and to regulate uses of excess human embryos created through assisted reproductive technology.
How do researchers effectively involve consumers and the community in their research?
Harnessing the power of research by combining genomics, precision medicine and public heath can help to address the long-term health and wellbeing of Aboriginal and Torres Strait Islander people.
Snakebite causes suffering, disability and premature death around the world. Globally, almost 7,400 people are bitten by snakes every day, leading to about 2.7 million cases of envenoming (venom poisoning) and 81,000–138,000 deaths each year.
This manual demonstrates the need for clinical ethics capacity in Australian health care organisations and provides guidance for institutions wishing to establish or strengthen an existing clinical ethics service.
Quality assurance (QA) and evaluation are important to ensure effective work and the best outcomes. However, confusion arises over if an activity is research, evaluation or QA as there may be similar research methods used.This document assists organisations in developing QA policy and appropriate oversight.
During the mid-20th century, epidemics of hospital-based and antibiotic resistant Staphylococcus aureus – or golden staph – were causing serious illness and death in hospitals internationally, and one strain was a particular problem in maternity hospitals. NHMRC-funded bacteriologists working at the Royal Prince Alfred Hospital (RPA) in Sydney made important contributions to knowledge about how to identify strains of golden staph and how to control its spread.
In Australia, fluoride is added to our water supplies to help to reduce tooth decay. In 2016 National Health and Medical Research Council (NHMRC) reviewed the scientific research on water fluoridation.
Transcript for the Ideas Grants peer reviewer Q&A webinar. Recorded on Tuesday, 16 July 2024 1:00 pm - 3:00 pm (AEST).
Worldwide, preterm birth (birth before 37 weeks) is the single largest cause of death in the newborn period and early childhood.1 In Australia each year, around 8% of babies (almost 26,000 in 2019)2 are born prematurely. A wide variety of health issues are associated with pre-term birth, including developmental delay, cerebral palsy, hearing and visual impairments, learning difficulties and psychiatric disorders. NHMRC-funded researchers at the South Australian Health and Medical Research Institute (SAHMRI) and other Adelaide-based institutions have made major contributions to reducing the prevalence of premature births and improving the health of premature babies.