The Community and Consumer Advisory Group's (CCAG) role is to provide strategic advice to the National Health and Medical Research Council's (NHMRC) Chief Executive Officer on health matters and on health and medical research matters from a consumer and community perspective.
CCAG plays an important role in providing a health community and consumer perspective on a diverse range of NHMRC business, including advice on community and consumer involvement in health and medical research.
The advice of the CCAG complements the advice and expertise of community and consumer representatives on the NHMRC Council and its Principal Committees. For further information on how NHMRC supports community and consumer engagement, including access to resources, please visit the NHMRC website.
CCAG is a Working Committee that was established under Section 39 of the NHMRC Act 1992 and is comprised of 11 consumer and community leaders in Australia. The committee members for the 2018-2021 triennium are below.
The Hon Judi Moylan was elected to the federal Seat of Pearce in 1993 and served as the Member for Pearce until her retirement in 2013. Portfolios included, Minister for Family Services and Minister for the Status of Women.
In 2013 she was appointed Independent President and Chair of the Board of Diabetes Australia and served in the capacity for five years retiring December 2019. From 2013-2015 Ms Moylan was co-chair of the National Diabetes Strategy Advisory Group (NDSAG) for the Federal government and is currently co-chair of the Implementation Reference Group advising the Health Minister on the implementation of the recommended policies of the NDSAG.
Elected Global Coordinator of the International Diabetes Federation’s Parliamentarians for Diabetes Global Network (IDF-PDGN) Ms Moylan served in that position until the conclusion of the successful Global Forum in Vancouver CA in November 2015.
In January 2018 Ms Moylan was appointed to the Advisory Board of Access Care Network Australia (ACNA), a subsidiary company of the Silver Chain Group.
Ms Moylan is a current member of NHMRC Council (2018 – 2021 triennium).
- Government Affairs Adviser: Diabetes Australia
- Member: Advisory Board ACNA (a Subsidiary of Silver Chain Group), Mitochondrial Donation Expert Working Committee
- Co-Chair: National Diabetes Strategy Advisory Group - Implementation Reference Group
For more than 12 years Ms Cahill led the health consumer organisation, Arthritis Australia, building its reach and increasing its products and services. She left this position in July 2018. Previous professional roles include Marketing & Business Development Manager, Arthritis Australia; Director of Marketing, TAFE NSW Western Sydney Institute; and General Manager, Capricorn Publishing.
Currently, Ms Cahill is a Member of the National Health and Medical Research Council Community Observers Working Committee and, formerly, was a member of Comcare Health Benefits of Work Advisory Group (2015-16); The Department of Health/Department of Industry Clinical Trials Advisory Committee (2014-15); The Department of Health’s Life Saving Drugs Program Review Reference Group (2014-15); Consumers Health Forum Board (2008-14); and TAFE NSW Western Sydney Institute Board (2001-03).
Ainslie is a Member (AM) of the Order of Australia (General Division); Life Member of Arthritis Australia; and Life Member of Consumers Health Forum of Australia.
Ms Cahill is a current member of the NHMRC Australian Health Ethics Committee (2018 – 2021 triennium).
- Member: Commonwealth Department of Health Natural Therapies Review Expert Advisory Panel - appointed August 2019
- Leader: Community and Consumer Involvement and Engagement, Sydney Partnership for Health, Education, Research and Enterprise (SPHERE) - appointed August 2019
- Sitting fees and expenses: To attend NHMRC Principal Committee meetings and NHMRC Community Observers Working Committee
An experienced lawyer, Ms Rebecca Davies has been involved in health related organisations for over 22 years, since her now 24 year old daughter was diagnosed with Type 1 diabetes. She is a long standing board member at JDRF Australia, chairs its research committee and sits on the International Board. She is President of the Heart Foundation (NSW) and sits on its national board along with other boards in the health and financial sectors.
Ms Davies is a previous member of the NHMRC Australian Health Ethics Committee, Research Committee and the Community and Consumer Advisory Group. Ms Davies has also been an observer for NHMRC grant reviews.
Ms Davies is a current member of the NHMRC Health Innovation Advisory Committee (2018 – 2021 triennium).
- Director: Catholic Healthcare Limited, Chris O'Brien Lifehouse, Juveniles Diabetes Research Foundation, Transparency International Australia Limited, The Actuator Operations Ltd
- Member: Quality and Safety Committee, UNSW Big Data, Patient and Public Panel, British Heart Foundation Big Beat Challenge, Finance Council of the Catholic Archdiocese of Sydney, Sydney Health Partners and Sphere, National Heart Foundation, member Strategic Research Committee
- Board: Advisory Board, Catholic Development Fund, Catholic Archdiocese of Sydney
- Writer/Facilitator: Australian Institute of Company Directors
Ms Christine Gunson has over 30 years professional experience as a human resources (HR) adviser at senior levels across the mining, manufacturing and higher education sectors. Since 2000, Ms Gunson has been in the role of Manager of Strategic HR for Edith Cowan University with a focus on workforce planning, workforce metrics and performance measurement reporting and development.
Since 2009, Ms Gunson has worked on a select number of health sector strategic consultancy projects with Dr Norman Swan which has provided insight into the sector and its challenges as it responded to state and Commonwealth reform agendas. Subsequently she was approached to be involved in consumer representation related in particular to government initiatives around hospital performance measurement, reporting and accountability. This involved two years with the National Hospital Performance Authority (NHPA) on two consecutive advisory groups.
Ms Gunson is registered with Consumer Health Forum (CHF), and her interests relate to effective deployment of the health workforce in the interests of consumers, research workforce engagement with consumer voices in research processes, overall diversity and renewal of the research workforce which as recent published studies have shown lacks gender and other diversity. In 2016-17 Ms Gunson was the consumer representative on the NHMRC Structural Review Expert Advisory Committee.
Ms Gunson is a current member of the NHMRC Research Committee (2018 – 2021 triennium).
- Employment: Strategic HR, Edith Cowan University WA
- Consumer Representative: Consumer Health Forum (CHF) on two National Hospital Performance Authority (NHPA) hospital efficiency and performance reporting
- Consumer Representative: NHMRC Structural Review Expert Advisory Committee
Ms Philippa Kirkpatrick is the Deputy Director of Future Capability at ACT Health. Philippa has 10 years’ experience in senior roles in the health sector, with her career history spanning laboratory science, clinical research, non-government organisations, state and Commonwealth government.
She was a founding director of the Immune Deficiency Foundation of Australia and was a representative on the Close the Gap Steering Committee. Ms Kirkpatrick established the National Blood Sector Research and Development Program and was a member of the Australian Red Cross Blood Service Research Advisory Committee.
Ms Kirkpatrick is passionate about improving care at the end of life and was integral in the development of the Dying to Talk Discussion Starter, for which she was awarded the Marion Seal award in 2016.
Ms Kirkpatrick is a current member of the NHMRC Health Translation Advisory Committee (2018 – 2021 triennium).
- Employment: ACT Health
Associate Professor McAullay has considerable experience in health research, policy and practice. He is a registered nurse with a research focus on maternal, infant and child health, primary health care and other health services research.
Associate Professor McAullay currently works as Director of the Centre for Improving Health Services for Aboriginal Children (ISAC). He also runs his own consulting company (Dan McAullay Consulting) and is a Director with the majority Australian Aboriginal and Torres Strait Islander owned and managed communication consulting company, Mode Black.
Associate Professor McAullay is a current member of the NHMRC Principal Committee Indigenous Caucus (2018 – 2021).
- Member: Consumer Advisory Panel, Walter and Eliza Hall Institute, Victorian Branch Council Australasian College of Health Service Management
For three decades, Mr Harper has been dedicated to public health as a leader within Cancer Council Victoria, Quit Victoria, VicHealth and the Tasmanian AIDS Council. Since 2011, as Cancer Council Victoria’s CEO, Mr Harper has steered the organisation’s important work in cancer research, prevention, support and advocacy. During this time, the Council has led research initiatives in tobacco plain packaging, epidemiological studies, biomedical research to improve treatment for low survival cancers, and developing economic evidence on cancer prevention.
During his time as CEO of VicHealth, the organisation developed programs to address violence against women, alcohol harms, sedentary environments, promoted workplace health and expanded economic evidence of primary prevention programs.
Mr Harper has a Bachelor’s degree in Economics, a Postgraduate diploma in Health Promotion, and a Master Degree in Health Economics. In 2018 he was awarded an Honorary Doctorate by Deakin University for ‘outstanding contributions and commitment to public health and for willingness to be innovative and brave in advocating for public health’.
- Employment: Cancer Council Victoria
- President: Non-Communicable Disease Alliance
Ms McKenzie has worked as a consumer advocate in research organisations since 2004. In 2016 she led the establishment of the WA Health Translation Network’s, Consumer and Community Health Research Network. Ms Mckenzie is now the Community Engagement Manager at the Telethon Kids Institute.
Ms Mckenzie is a Senior Consumer Representative for Consumers Health Forum of Australia and former Chair of Health Consumers Council WA. She serves on key state and national health and research committees for the following agencies: the Department of Health, the National Prescribing Service and the Australian Commission on Safety and Quality in Healthcare.
In 2015 Ms Mckenzie was appointed to the Order of Australia for her work in health service and research.
- Employment: Telethon Kids Institute
- Member: National Health and Medical Research Council’s Community and Consumer Advisory Group, National Health and Medical Research Council’s Alcohol Guidelines Working Committee, Australian Commission on Safety and Quality in Healthcare Clinical Trials Governance Framework Committee, National Health and Medical Research Council’s Targeted Call for Research Prioritisation Committee, Australian Health Research Alliance’s Consumer and Community Involvement Steering Committee, Australian Clinical Trials Alliance’s Strengthening Consumer Engagement Reference Group (appointed as Head of CCHRN), Commonwealth Department of Health Medical Services Advisory Committee, Protocol Advisory Sub-Committee, Commonwealth Department of Health HTA Consumer Consultative Committee, Northern Australia’s Research Network’s Executive Leadership Group, National Prescribing Service Consumer Advisory Group, National Prescribing Service Data Governance Committee, Medicines Australia Code of Conduct Committee
Mr Rees has worked at senior levels in both British and Australian Public Services. In Britain he worked as Private Secretary to senior Ministers, in the Cabinet Office and in Economic Departments. In Australia, since 1976 Mr Rees has worked in diverse program and policy areas including Prime Minister and Cabinet, Employment and Training, Aged Care, Disabilities, Housing and the Aboriginal and Torres Strait Islander Commission. He was Chair of the Nursing Homes and Hostels Review in 1986, and was involved in implementing the first wave of aged care reforms.
Mr Rees was CEO of Alzheimer's Australia from 2000 to 2014. During his time, the Dementia Initiative was implemented (2005) and important commitments were made to tackle dementia in the Aged Care reforms (2012). Mr Rees has been Chair of Alzheimer’s Disease International (ADI) since 2015. Mr Rees is an independent Member of the Board of Parkinson’s Australia.
- Chair: Alzheimer's Disease International
- Board Member: Parkinson's Australia
Mr Stubbs holds federal and state government positions at both board and committee levels. He is a survivor of leukaemia and an active representative and advocate for people affected by cancer and chronic disease. He is an Honorary Associate of the University of Sydney, School of Medicine.
Mr Stubbs is the Australian Consumer representative on the International Colon Cancer Familial Register funded through the National Cancer Institute (NCI) in the US. Mr Stubbs has edited consumer booklets for Cancer Australia and the Cancer Council NSW, and contributes to Government policy on cancer, cancer services, chronic Illness and the value of consumer involvement.
He has contributed to over 30 research papers as both an AI, and CI and is active in developing policies and procedures to ensure that consumers are integral stakeholders in clinical trials and research in this country.
- Board Member: Cancer institute of NSW, NSW Medical Board, Illawarra and Shoalhaven Local Area Health District
- Member: Medical Services Advisory Committee - Evaluation Sub-Committee
Jen Morris is a healthcare consumer advocate, patient safety professional and healthcare sector board member. She is a member of many advisory and decision-making bodies within health services, professional organisations, educational institutions, regulatory bodies and government.
Jen is also non-executive director of NPS MedicineWise, a member of the Occupational Therapy Board of Australia, and a member of the Safer Care Victoria Academy. She is a member of the Victorian Clinical Council, and holds consumer representative positions with the Australasian College for Emergency Medicine, Australian Primary Health Care Nurses Association and the Victorian Health.
Previously, Jen was a researcher within the Law and Public Health Unit at the School of Population and Global Health at the University of Melbourne, with a focus on healthcare regulation and governance.
- Employment: Safer Care Victoria Academy
- Member: 'Building Nurse Capacity' Project Advisory Group, Australian Primary Health Care Nurses Association, Occupational Therapy Board of Australia, Continuing Professional Development Committee, Australasian College for Emergency Medicine, Non-executive director, NPS MedicineWise, Victorian Clinical Advisory Council (DHHS) and Health Complaints Commissioner Advisory Council (Victoria).