Scope
The ME/CFS guidelines will provide advice on the diagnosis and management of ME/CFS. NHMRC recognises there are other conditions (such as long-COVID, postural orthostatic tachycardia syndrome (POTS) and fibromyalgia) that share common symptoms with ME/CFS, and we will make reference to these conditions where appropriate.
The guidelines are aimed at primary care, with a particular focus on the interactions between patients and general practitioners and appropriate referral pathways.
Stakeholder scoping survey
Between March and April 2025, NHMRC released a scoping survey to better understand the needs of the ME/CFS community, seeking input from patients, clinicians and carers.
There was a significant response to the survey, and NHMRC wishes to thank participants for taking the time to complete it. The valuable feedback received will be considered by NHMRC and the Guideline Development Committee during the development of the ME/CFS guidelines.