The ME/CFS Scoping Survey was released by NHMRC on 21 February 2025 and was open for 9 weeks through to 27 April 2025. The survey was open to the public and was designed to gather insights from individuals with ME/CFS and related conditions (Long COVID, postural orthostatic intolerance syndrome (POTS) and fibromyalgia), carers, GPs and other healthcare professionals that provide care to people with ME/CFS and related conditions, researchers and consumer organisations. The purpose of the survey was to understand what stakeholders consider priorities for inclusion in the new Australian ME/CFS Clinical Practice Guidelines and to understand patient and healthcare professionals’ experiences of barriers to and/or enablers of care.
The full report is available from the Downloads section.
