The active involvement of consumers and community members in health and medical research benefits the quality and direction of research. Consumer and community involvement is about research being carried out with or by consumers and community members rather than to, about or for them.
This joint statement has been developed with the aim of supporting consumer and community involvement across all types and levels of health and medical research.
The vision of the Statement is:
Consumers, community members, researchers and research organisations working in partnerships, to improve the health and well-being of all Australians through health and medical research.
Research informs health care decisions and research institutions, researchers, consumers and community members should work collaboratively to support, facilitate and value the contribution that consumers and community members make to research, and its development, conduct and communication.
As beneficiaries of advances in health care, consumers and community members have an interest in promoting the translation of research into improved policy and practice. It follows that health and medical research should develop processes and systems to incorporate and support sustainable consumer and community involvement.
This Statement replaces the joint NHMRC/CHF Statement on Consumer and Community Participation in Health and Medical Research published in 2002.