"NHMRC believes consumer and community involvement is essential for high quality research, and we know that research where the consumers and the community are involved right from the beginning is better research and has better outcomes and more impact."
Listen to NHMRC CEO, Professor Steve Wesselingh, discuss consumer and community involvement at the Queensland Aphasia Research Centre (QARC) and the importance of having your say on the review of the Statement on Consumer and Community Involvement in Health and Medical Research (the Statement).
NHMRC and the Consumers Health Forum of Australia are reviewing the Statement - have your say and get involved today.
- Video transcript
[An image appears of Steve Wesselingh talking to the camera, with the NHMRC logo beside text at the bottom of the screen: Professor Steve Wesselingh, NHMRC CEO]
Steve Wesselingh: What if words suddenly disappeared?
[Image changes to show letters in the background illuminating the words “HEAR”, “SAY”, “WRITE”, “READ” and photos of people talking, reading and writing appear amongst the letters]
Hearing them, saying them writing them, reading them.
[Image changes to show the word “IMAGINE” appearing multiple times down the screen, and then the image changes to show a split screen of photos of a male talking, and a male listening]
Imagine if they no longer made any sense.
[Image changes to show a male’s face as the camera pans in slightly, and then the image changes to show a female raising a hand and rubbing her forehead as the camera zooms out]
For Australians living with aphasia, this is their daily reality.
[Music plays as the image changes to show a blue screen with the NHMRC logo]
[Images move through to show a building, views of people with glasses, a family tree website on an iPad, Steve talking to the camera, views of colleagues together, and text appears: The Queensland Aphasia Research Centre, The University of Queensland]
The Queensland Aphasia Research Centre, they have been doing amazing work in understanding the needs of people with aphasia and essentially co-designing their work with the community and people affected by aphasia.
[Music plays as image changes to show a male, and then the image changes to show the males hands holding up lab equipment]
[Images move through to show researchers talking, listening, presenting, and in conversation, a male using a microscope, Steve talking, on a keyboard, and hands typing on a keyboard]
NHMRC believes consumer and community involvement is essential for high quality research, and we know that research where the consumers and the community involved right from the beginning is better research and has better outcomes and more impact.
[Music plays as images move through to show a female using a laptop, two females walking with a girl riding her bike, and then views of Steve talking to the camera]
The consumer statement sets the framework and expectations for consumer and community involvement in research.
[Images move through to show a multi well plate under a microscope, views of a female researcher talking and using the laptop, hands using a repeat pipette, and the female using the repeat pipette]
We know how important it is to get that right, because if we have high quality consumer and community involvement in research we'll have great health outcomes.
[Images move through to show views of couples and colleagues talking together, a pipette in a test tube, males smiling, lab equipment in use, cells magnified, and then Steve talking to the camera]
If the consumers have been involved in the whole pathway, they can really be helpful in explaining that process, product, policy or drug and really move those discoveries into care as quickly as we possibly can.
[Image changes to show an animation of various people spread out across the screen, then they assemble at the bottom of the screen]
Research can't happen without consumers and communities.
[Animation image shows blue circles rising from the assembled crowed and morphing into three stacked speech text boxes]
Have your say and get involved.
[Animation image shows a checklist clipboard appearing that the speech boxes merge onto the clipboard]
Visit our website to find out how to participate in forums and you can also fill in our survey.
[Music plays as the image changes to show the NHMRC logo on a blue screen]
End of transcript.
