An estimated 1 in 10 Australian adults (10%) - about 1.7 million people in 2011 - 12 - had biomedical signs of chronic kidney disease1
Learning how disease can affect people’s identities and impact their families, Professor Allison Tong wanted to help people live well with their disease.
To do this Professor Tong brought together over 5500 patients, their family members and health professionals from more than 100 countries to determine what are the most important outcomes to be reported in dialysis trials. Dialysis is a treatment for chronic kidney disease which is used to filter the blood.
Professor Tong explains that the Standardised Outcomes in Nephrology or SONG initiative found that what mattered most to patients included fatigue, mortality, cardiovascular disease and vascular access (which is what helps connect the patient to the dialysis machine.)
She shares her research with us and explains the next steps in implementing these patient-centred programs.