The Regulation of Health Information Privacy in Australia

Summary information

Publishing date: 
Corporate archive
Reference number: 
Available in print: 
No - PDF only
Further information: 


In mid 2003 the NHMRC identified privacy as a priority issue that needed investigation. Specifically, NHMRC was being told that the privacy framework surrounding health information in Australia was restricting health and medical research and health care delivery. These messages were coming from researchers, health consumers, medical practitioners, data custodians and human research ethics committees.

Mindful of the intention to review the Privacy Amendment (Private Sector) Act 2000 two years after its introduction, the NHMRC agreed that it would be timely to investigate these claims with a view to providing a detailed, reasoned and evidence based submission to the review of the privacy legislation.

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