NHMRC is Australia's peak body for supporting health and medical research; for developing health advice for the Australian community, health professionals and governments; and for providing advice on ethical behaviour in health care and in the conduct of health and medical research. NHMRC is responsible to the Commonwealth Minister for Health and has offices in Canberra and Melbourne.
The legislative basis of the NHMRC is the National Health and Medical Research Council Act 1992 (the NHMRC Act). NHMRC's functions come from the statutory obligations conferred by the NHMRC Act, which provides for the NHMRC to pursue activities designed to:
- raise the standard of individual and public health throughout Australia;
- foster the development of consistent health standards between the various States and Territories;
- foster medical research and training and public health research and training throughout Australia ; and
- foster consideration of ethical issues relating to health.
NHMRC also has responsibilities under the Prohibition of Human Cloning for Reproduction Act 2002 and the Research Involving Human Embryos Act 2002, which include the development and implementation of a program for reviewing and enhancing relevant guidelines, and the provision of administrative improvements in the licensing process.
personal information means information or an opinion about an identified individual, or an individual who is reasonably identifiable:
- whether the information or opinion is true or not; and
- whether the information or opinion is recorded in a material form or not.
sensitive information means
- information or an opinion about an individual's:
- racial or ethnic origin; or
- political opinions; or
- membership of a political association; or
- religious beliefs or affiliations; or
- philosophical beliefs; or
- membership of a professional or trade association; or
- membership of a trade union; or
- sexual orientation or practices; or
- criminal record;
that is also personal information; or
- health information about an individual; or
- genetic information about an individual that is not otherwise health information; or
- biometric information that is to be used for the purpose of automated biometric verification or biometric identification; or
- biometric templates.
NHMRC’s collection, holding, use and disclosure of personal information
The NHMRC holds several classes of personal information (some of which include sensitive information). NHMRC may collect information from documents provided to it in correspondence, from submissions made through its public consultation or guidelines portals, its website and its online Research Grants Management System.
The information is held in, on or as:
- Database of assigners and assessors for NHMRC grants
- NHMRC grants and fellowships management records
- Reports about NHMRC funded grants
- Correspondence to the NHMRC, including responses to NHMRC’s public consultation
- Ministerial correspondence
- Complaint files including records of the NHMRC Commissioner of Complaints
- Records of the Australian Research Integrity Committee
- Investigation records
- Licences authorising the use of human eggs and excess assisted reproductive technology embryos
- Human Research Ethics Committee database
- Records of NHMRC Council, Principal Committees and Working Committees
- Register of Institutions with Certified Ethical Review processes
- Register of Research Committees of Approved Research Institutes
- Register of Administering Institutions
- Research Translation Faculty Database
- Guidelines in Development Register
- Finance records
- Freedom of Information requests
- Request for Tender and contract information
- Personnel and staffing files; and
- Subscription database and webforms
A detailed description of the types of personal information contained in our records is available below:
This information covers NHMRC records that contain personal or sensitive information, and the purposes for which the NHMRC collects, holds, uses and discloses personal information.
No sale of personal information
Under no circumstances will NHMRC sell or receive payment for licensing or disclosing your personal information.
Dealing with NHMRC anonymously or pseudonymously
You can ask NHMRC to deal with you anonymously or pseudonymously (using a fictitious name) unless we expressly identify that it is not practicable for us to deal with you on that basis.
In the case of applications for research grants, it will not be practicable for NHMRC to deal with you on an anonymous or pseudonymous basis, in light of our obligations under the Financial Management and Accountability Act 1997 (and from July 2014, the Public Governance, Performance and Accountability Act 2013). We will not accept a grant application or report that is anonymous or not in your real name.
Gaining access to your personal information held by NHMRC, and requesting the correction of any errors
You have the right to request access to any of your personal information held by NHMRC and to request corrections.
If you would like to request access to your personal information you can contact the NHMRC’s Privacy Contact Officer on (02) 6217 9350, by email to firstname.lastname@example.org or by writing to the following address:
Privacy Contact Officer
GPO Box 1421
CANBERRA ACT 2601
If, after reviewing your personal information, you consider that it contains errors, or requires amendment, you can request that these errors be corrected or the amendments be made.
To do this you should contact the NHMRC Privacy Contact Officer, enclosing the relevant information and setting out the corrections or amendments sought, with appropriate supporting documentation.
If you are uncertain about how to set out your request, or the supporting material required, the Privacy Contact Officer will be able to assist you.
Disclosure of personal information to overseas recipients
NHMRC participates in a number of funding schemes which provide assistance to Australian researchers to participate in collaborative research projects with international researchers. In order for applicant researchers to participate in these schemes, their personal information may need to be disclosed by NHMRC to overseas recipients. Applicants are advised of this possibility at the time of making their application.
The locations of overseas recipients
The following are the collaborative schemes and the locations of overseas recipients where personal information of applicant researchers held by NHMRC may be disclosed.
|Name of scheme||Location(s) of overseas recipient|
|NHMRC – European Union Collaborative Research Grants||The European Union|
|Global Alliance for Chronic Diseases||China, Canada, the European Union, India, the UK, USA, South Africa
|NHMRC – California Institute of Regenerative Medicine Collaborative Research Grants||California, USA
|NHMRC – Agency for Science, Technology and Research Joint Grant Call for Research - Using Integrative Technologies to Combat Emerging Infectious Disease||Singapore
|NHMRC - National Institute for Health Research Collaborative Research Grants||United Kingdom
|Tripartite Agreement on cooperation to improve Indigenous peoples’ health with the Canadian Institutes of Health Research and the Health Research Council of New Zealand||New Zealand, Canada|
There may also be occasions when personal information (contained in applications for funding under one of NHMRC’s schemes) must be sent overseas to an expert reviewer or assessor for peer review.
Applicants are advised of this possibility at the time of making their application, and can elect not to have their information sent overseas for peer review.
Information collected through the NHMRC website
Subscriptions and web forms
If you subscribe to any of our regular electronic publications, the personal information you submit through the subscription service form will be used solely by NHMRC and not be disclosed to anyone.
There are security risks associated with transmission of information via the Internet. The NHMRC has taken reasonable steps to safeguard against unauthorised access, use, modification or disclosure of personal information we hold electronically. Before deciding whether to use this facility you should make your own assessment of the potential risks to the security of your information.
By clicking on the warning/disclaimer tick box on the subscription service or our web based forms, you acknowledge and agree that the Commonwealth will not be liable for any unauthorised access or for any loss or damage that you may incur as a result of any unauthorised access to this site or to the information transmitted by you or any other person.
NHMRC uses 'cookies' for maintaining contact with a user through a website session. A cookie is a small file supplied by us and the web browser software on your computer when you access our site. Cookies allow us to recognise you as an individual as you move from one of our web pages to another.
All cookies will be immediately lost when you end your internet session and shut down your computer. Our copy of your information will be automatically deleted twenty minutes after you last use our website. This information is only used to help you navigate our website systems more efficiently, not to track your movements through the internet, or to record private information about you.
Any system on the NHMRC website that records information about you will specifically ask your permission first.
When you visit the NHMRC webstie, NHMRC makes a record of your visit and logs the following information for statistical or systems administration purposes:
- your server address
- your top level domain name
- the date and time of access to the site
- pages accessed and documents downloaded
- the previous site visited
- type of browser used
This information is analysed to show broken links in our website, bottlenecks, and other site problems. We use this information to maintain our site for your efficient use.
No attempt will be made to identify anonymous users or their browsing activities unless NHMRC is legally compelled to do so, such as in the event of an investigation, where a law enforcement agency may exercise a warrant to inspect the Internet Service Provider's log files.
Search terms you enter when using our search engine are collected, but are not associated with any other information that we collect. We use these search terms to ascertain what people are looking for at our site, and to improve the services that we provide.
Making a privacy complaint if you believe that NHMRC has breached the Australian Privacy Principles
If you wish to complain that the NHMRC has breached one of the Australian Privacy Principles you can contact the NHMRC’s Privacy Contact Officer on (02) 6217 9350, by email on email@example.com, or by writing to the following address:
Privacy Contact Officer
GPO Box 1421
CANBERRA ACT 2601
Your privacy complaint should be in writing and set out as much detail as possible and include any supporting documentation. You may make a privacy complaint anonymously, or by using a pseudonym. However, you should realise that if you wish to communicate with the NHMRC in this way, our ability to fully investigate and deal with the complaint may be restricted.
How NHMRC will deal with your privacy complaint
The NHMRC will usually respond to your complaint within 30 calendar days and provide you with its response in writing.
If NHMRC takes more than 30 days to respond to your privacy complaint (without your prior agreement), or you are not satisfied with the NHMRC’s response, you may then take your privacy complaint to the Office of the Australian Information Commissioner (OAIC). A complaint can be made to the OAIC using the online form available at this link: https://forms.business.gov.au/aba/oaic/privacy-complaint-/
Privacy Contact Officer
GPO Box 1421
CANBERRA ACT 2601